11/18/2025 – … amid the slow swirl of appointments, meds, and blood draws, I caught a glimpse of me in a reflection and noticed I had quietly exited the “normal ambulation” club somewhere along the way.
Continue readingSo… This is How I Walk Now?
Post Category → dermatomyositis
Love in the Time of Braille Machines and Hoodies
10/22/2025 – Just my face pokes out the hoodie when Suzanne walks in. A lesser person might roll her eyes and do a U-turn. She doesn’t. She smiles a smile that is deeply non-condescending and devoid of pity, and makes me feel like we’ll get through this thing together.
Continue readingThe Incredible Shrinking Man
… she offered to remeasure. But I declined. It was easier to pretend it was a clerical error than to face the hard truth: I was now officially closer to hobbit height.
Continue readingThe Button-Down Shirt Disaster of 2025
Either this condition I have is worsening, or the price of button holes has gone up like everything else, so they’re making them smaller.
Continue readingIt Was the Worst of Times, It Was the Best of Times*
*Famous first sentence first drafts That title above is not just the opening line of a famous book — it’s also a pretty spot-on description of how it sometimes feels to launch a brand new play into the world. Opening weekend of The Fork had both ends of that Dickensian spectrum. I missed opening night — and… Continue reading
I’m Not Down, I’m in My Blue Period
There are days that feel a little… blue. Not tragic, not dire. Just sort of soft and soggy around the edges, like a 5 Guys burger. Today was one of those days.
Continue readingWhen Life DMed Me This 7-Syllable Plot Twist
It’s like a smorgasbord of symptoms, only this is the twisted kind of buffet line where you don’t get to pick the items you want, the items get to pick you.
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